E-Patient Connections 2012

Welcome and Chairperson’s Introduction
e-Patient Connections is known for its unique openings. More like a show than a conference, be there on time so you don't miss what's in store for this year!

Kevin Kruse, Co-Founder, e-Patient Connections, NY Times Best Selling Author

Christine MacAdams, Co-Founder, e-Patient Connections

Panel Discussion:
OI! How Do I…. Navigate Social Media in a Regulated Environment?

• Formulating a cohesive strategy for presenting the company and interacting in the digital realm in absence of clear guidance from the FDA
  
• Discussing FDA draft guidance on responding to requests for off-label information
  
• Examining the implications of this guidance for social media initiatives
  
• Understanding the liability of your company for the content of third-party blogs which mention your devices
• Examining successful examples of social media strategy campaigns
  

Moderator:
Phil Baumann, Member, Advisory Board, MAYO CLINIC CENTER FOR SOCIAL MEDIA, Founder, HEALTH IS SOCIAL

Panelists:
Amy O'Connor, Director, Digital Government Affairs, ELI LILLY

Jonathan Cho, Chief, Communications Technology Branch, NATIONAL CANCER INSTITUTE (NIH)

Todd Kolm, Director, Emerging Channel Strategy, Consumer Center of Expertise, PFIZER, INC.

Rules of Engagement: Strategies for Overcoming Regulatory Barriers in Patient Communication

• Regulatory and FDA backdrop on clinical trials
  
• Overcoming ethical and compliance restrictions with supplying tools to and communicating with patients
  
• What’s allowed?
  
• Successfully approaching your counsel/regulatory team
  
• Confidentiality issues with trial sites and online communities
  
• Comparison of regulatory considerations for doing research in other countries
  

Moderator:
Mark Bard, Co-Founder, DIGITAL HEALTH COALITION

Panelists:
Tiffany Peterson, Patient Advocate, FRIENDS AGAINST LUPUS

Kerri Sparling, Patient Opinion Leader, SIX UNTIL ME

Niki Wyre, Patient Advocate, RA, Founder, RACHICKS.COM

“Change IS Coming” Enhancing Patient Engagement Through Change Management within Your Organization

• Why is healthcare behind other industries when it comes to marketing?
  
• How do healthcare organizations strive to address this in a health way?
  
• How to drive change within an organization for patient engagement
  
• Shifting traditional marketing to digital marketing

Moderator:
Carly Kuper, Vice President, Corporate Communications, COMMUNICATION MEDIA, INC.

Panelists:
Dennis Urbaniak, Vice President, US Diabetes, SANOFI

Lauren Walrath, Director, Business Model Innovation & Operations, BRISTOL-MYERS SQUIBB

Tina Sampath, Director of eMarketing & Patient Marketing, GILEAD SCIENCES

Kathy Hutchens, Director of Marketing and Patient Contact Center, SHARP REES-STEALY MEDICAL GROUP

Kel Smith, Head of Innovation, HEALTHED

The Cultural Anthropology of Patients

• Understanding key criteria needed to building lasting relationships with patients
  
• Identifying and developing programs that will impact patient outcomes
• Collaborating this data into a multi-channel digital marketing plan
  
• Sharing examples of innovative tehcniques for gathering unmet needs and how insights were transformed into great ideas
  

Bill Drummy, Founder and CEO, HEARTBEAT IDEAS AND HEARTBEAT WEST

Let the Games Begin! Using Gamification as a Tool to Engage e-Patients Effectively

• Assessing gaming as a vehicle to encourage people to adopt new habits or influence their behavior
  
• Examining how companies are now using gamification to deliver their marketing messages and advertising to the wider public
  
• Can gamification work for pharma?
  
• Designing new games to promote health without any commercial agenda
  
• Can games change entrenched human behavior?
  

Barbara Ficarra, Founder, HEALTHIN30, Media Broadcaster, Writer, HUFFINGTON POST

WEGO Health Activist Awards

WEGO Health and ePatient Connections are partnering to recognize the patients and caregivers who were honored in the first-ever WEGO Health Activist Awards as well as to feature their unique perspective at this year’s conference. These awards are the first of their kind, allowing community members to acknowledge those who dedicate their time, expertise, and support to the online health community.

Jack Barrette, CEO, WEGO Health

Scott Benner, Diabetes Health Activist

Niki Wyre, RA Health Activist

WEGO Health scholarship winner:
Hannah McDonald, e-Patient and Diabetes Health Activist

Who’s Hungry? Networking Lunch & Breakout Sessions
e-Patient Connections offers you the opportunity to meet individually or in small groups with people that can help you solve a problem, generate a new idea or learn a new skill. Whilst enjoying lunch and networking with conference participants and partners, participate in one of the concurrent breakout sessions taking place in the exhibit hall:

• Social Media Coaching Corner – Learn about and get training in the latest social media platofrms and understand how these can engage the e-Patient community.
  
• Meet the Connectors - Speak to a mater networker about getting connected with someone to help your cause.
  
• Speaker Lunch & Learn – Grab lunch with one of our featured speakers for your chance to ask questions to our expert-led e-Patient speaker faculty.
  
• Creating a Social Media Crisis Plan – Learn how to prepare and respond if a social media disater happens to you.
  
• So you think you can Twitter? – Gain personalized training and guidance on Twitter and understand how this can engage patients eveywhere.
  

Investors Panel: Show Me The E-Patient Money!

• Which criteria should healthcare organizations focus on in order to attract investors?
  
• What do investors consider as a good option for investing in the product?
• How can investment opportunities create a patient experience that differentiates your organization from others?
  

Moderator:
Talya Miron-Shatz, Ph.D., CEO, CureMyWay, Professor, Warton School of Business, UNIVERSITY OF PENNSYLVANIA

Panelists:
Gavin Teo, Senior Associate, COMCAST VENTURES

Rick Holdren, Angel Investor, HEALTHCARE ANGELS

Lenard Marcus, MBA, Principal, EDISON VENTURE FUND

Jordan Elpern-Waxman, Co-Founder, Penn Digital

E-Patients: Mobile Empowerment

• A day in the life of LouLou a patient with cystic fibrosis
• How mobile devices and applications can help:
  
  • Maintain and improve lung function
  • Reduce hospital stays while saving time and money
    
  • Result in peace of mind
    

Jeanne Barnett, Founder, CysticFibrosis.com President, MEDRISE.COM

Lauren Brenneman (LouLou), e-Patient w CF, Health Opinion Leader TECHCF.ORG

Patient Advocate Outreach Guidelines: A Practical Guide to How Pharma and ePatients Can Work Together More Effectively

• Examining what patients are looking for online including anecdotal evidence, community, "me, too!" philosophy, hope, and sometimes true medical advice
  
• Understanding what patients are finding and how they're connecting (#dsma Twitter chat, socmed communities, fundraising for causes through Facebook)
• Discussing unique strategies how patients and HCPs can work together
  
• Assessing how industry can leverage patient bloggers including partnership with Animas
  

Kerri Sparling, Patient Opinion Leader, SIX UNTIL ME

John Pugh, Head of Online Communications, BOEHRINGER INGELHEIM

E-Patient Mobile Marketing Imperative

• Examining statistics on mobile consumption trends and predictions
  
• Assessing the role of mobile, versus web at different stages of patient and caregiver consumption
  
• Understanding organizational necessity to have multi-screen content, engagement and access strategy to satisfy customer access needs and intent including:
  
  • Mobile search
    
  • QR Codes
    
  • SMS
    
• Examining examples from industry
  
• Discussing top five “must dos” (rules) for companies in the mobile space for 2013 and beyond
  

Bill Meisle, Director, Digital Marketing Strategy and Delivery, GLAXOSMITHKLINE

Through the Looking Glass: What Does the Immediate Future of Personalized Medicine Look Like?

• How are computer networks and digital technologies changing the future of health care?
• How will the role of physicians change with the remarkable data coming forward not just for mimics but also sensors and other ways we can digitize the medical essence of individuals?
  
• Will you and your healthcare provider communicate better in the digital future?
  

Kent Bottles, MD, Senior Fellow, JEFFERSON UNIVERSITY SCHOOL OF POPULATION HEALTH

Is Early Detection Always Worth it? The Troubling Epidemic of "Pre-Diseases”

• Examining the culture of pre-diseases and understanding it’s impact on the diagnosis culture
• Is healthcare provider profit being considered ahead of patient wellbeing in pre-disease diagnosis?
  
• Do patients want to believe that every medical ailment has a ready medical solution?
  
• Evaluating the culture of precondition diagnosis, and if this may be doing more harm than good

Ivan Oransky, MD, Executive Editor, REUTERS HEALTH

Chairperson’s Closing Remarks and Networking Drinks Reception

Kevin Kruse, Co-Founder, e-Patient Connections, NY TIMES BEST SELLING AUTHOR

Christine MacAdams, Co-Founder, e-Patient Connections

Chairperson’s Recap of Day One and Remarks

How Do Patients View Pharma Companies’ Efforts to Use Social Media to Involve them in Clinical Trials?

• Examining how patients who are not connected to the pharmaceutical world view researchers efforts to connect them with clinical trials
  
• Discussing examples where companies have successfully reached out, as well as areas of miscommunication
  
• Understanding how to avoid common mistakes and more effectively communicate with patients who can benefit from their studies
  

Jenni Prokopy, Writer, Speaker, Founder & Editrix, CHRONICBABE.COM

There's an App for That! Engaging Patients Directly via Harnessing the Power of Next Generation Mobile Apps

• Examining healthcare's push to adoption of electronic healthcare records
  
• Understanding if and how a patient-facing App can benefit your patient-engagement strategy
  
• Evaluating novel strategies for patients to store their own health records, including medical conditions, vaccinations and physician contact information
  
• Identifying approaches for providing patients with quick, virtual records after releasing them to ordering physicians
  
• Predicting the future of mobile App development in response to current market products and services
  

Richard Charles Schwabacher, MPH, Product Manager, Mobile Health Platforms, QUEST DIAGNOSTICS

Pecha Kucha: 20 Slides in 20 Seconds… Then You’re Done!

Moderator:
Christine MacAdams, Co-Founder, e-Patient Connections

Do People Know What They Want? Leveraging Behavioral Economics to Improve Decision Making and Behavior

• Behavioral Economics 101: How time inconsistent preferences can influence human (personal and group) behavior—short-term vs. long-term behavior choices.
  
• Incentives: How can these preferences can be shifted through the use of incentives and how the type and timing of incentives can impact decisions and success
  
• Accountability: How various levels of peer and professional accountability can influence behavior through both negative and positive consequences
  
• Engagement: Discussion of the growing role social media can play in influencing behavior and how it can be leveraged as an effective means to initiate, engage, and maintain participation
  

Jordan Goldberg, Chief Executive Officer, STICKK.COM

Going Mobile – How User Research and Analytics Helped Shape Mobile Strategy at the National Cancer Institute

• Examining NIH’s strategy to communicate the latest in Cancer research to 3.2 million e-Patients via mobile platforms
  
• Examining initial focus groups and user research into mobile contexts of use for cancer information
  
• Testing of concepts and prototypes of mobile applications and mobile websites
  
• Analytics that helped identify content that would be most useful in the mobile context
  
• Modifications to standard usability testing practices to accommodate the mobile context
  
• Assessing project scope and how the agency will coordinate the project management
  
• Identifying examples of content and user interface challenges that we encountered in developing the site
  
• Presenting data about use of the mobile site since February’s 2012 launch
  

Jonathan Cho, Chief, Communications Technology Branch, NATIONAL CANCER INSTITUTE (NIH)

Panel Discussion: Doctor…, There’s a Doctor in My Pocket! Patient Empowerment Through Telemedicine and Mobile Health

• What are the opportunities to help patients become empowered?
  
• What are the barriers, which can hinder these opportunities?
  
• Assessing FDA regulation of mobile health
  
• Examining telemedicine as a tool to improve and empower patients, and reduce hospitalizations
  
• What kinds of technologies and ideas can be leveraged to support patient empowerment through telemedicine and mobile health?
  
• Aligning stakeholders towards a more patient-focused sustainable healthcare system for the future
  

Moderator:
Joseph Kim, MD, MPH, President, MCM EDUCATION

Panelists:
Arnie Friede, Principal, ARNOLD I. FRIEDE & ASSOCIATES

Doug Elwood, MD, MBA, Director, GMI Strategy and Innovation, BRISTOL-MYERS SQUIBB

Kelly Choi, MD, Vice President, Marketing, QUANTIAMD

Blaine Warkentine, MD, Founder, SOLVINGHEALTH

Who’s Hungry? Networking Lunch & Breakout Sessions
e-Patient Connections offers you the opportunity to meet individually or in small groups with people that can help you solve a problem, generate a new idea or learn a new skill. Whilst enjoying lunch and networking with conference participants and partners, participate in one of the concurrent breakout sessions taking place in the exhibit hall:

• Social Media Coaching Corner – Learn about and get training in the latest social media platofrms and understand how these can engage the e-Patient community.
  
• Meet the Connectors - Speak to a mater networker about getting connected with someone to help your cause.
  
• Speaker Lunch & Learn – Grab lunch with one of our featured speakers for your chance to ask questions to our expert-led e-Patient speaker faculty.
  
• Creating a Social Media Crisis Plan – Learn how to prepare and respond if a social media disater happens to you.
  
• So you think you can Twitter? – Gain personalized training and guidance on Twitter and understand how this can engage patients eveywhere.
  

Physician Panel – The E-Patient Movement: What Opportunities are Available for Physicians Based on Specialty?

• What are the barriers and opportunities related to the e-Patient phenomenon
  
• How do you improve outcomes in patients through digital aspects?
  
• Monitoring both patients and providers. How can you show how programs which are having an impact in compliance?
  

Moderator:
Joseph Kim, MD, MPH, President, MCM EDUCATION

Panelists:
Kent Bottles, MD, Senior Fellow, JEFFERSON UNIVERSITY SCHOOL OF POPULATION HEALTH

Alfred Bove, MD, Former President, AMERICAN COLLEGE OF CARDIOLOGY, Professor Emeritus, Medicine, Department of Medicine, TEMPLE UNIVERSITY

Daniel Hoch, MD, Assistant Professor, Neurology, HARVARD MEDICAL SCHOOL

Data Hypertension Management Using Internet-Based Communication

• Discussing telemedicine as a tool for communication methods to link patients with their health care provide
  
• Examining frequent telephone surveillance to reduce the number of hospitalizations for hypertension patients
  
• Developing an internet based system for connecting patient to their health care provider
  
• Identifying unique patient management strategies to motivate patients to understand their health status, and receive incentives to improve hypertension risk
  
• Educating patients about risk to understand the factors needed to reduce threat
  

Alfred Bove, MD, Former President, AMERICAN COLLEGE OF CARDIOLOGY, Professor Emeritus, Medicine, Department of Medicine, TEMPLE UNIVERSITY

E-Patients: We’re Taking Control and Driving Change

• Patients and doctors: a partnership.
  
• Examining the need for patients to monitor their health in real time.
• Personal spirometry for respiratory patients.
  

Jonathan Michael EMT-P, e-Patient, President, SIXTH SENSE HEALTHCARE INNOVATIONS INC.

Chairperson’s Closing Remarks and End of Conference

Afternoon Workshop Session: Engaging Patients and Physicians in Clinical Research Through Electronic Health Records

• Fostering collaborative decision-making between provider and patient, improving the patient experience, leads to better outcomes, and can reduce readmissions
• Assessing clinical trial alerts are tools for making patients aware of upcoming trials they may become eligible for based on data in their electronic health records, allowing physicians to instantly consider and discuss the clinical trial with the patient
  
• Examining this approach for certain studies. Examining data standards, data quality, and the need for cross-organizational collaboration and innovative business models
  
• Discussing approaches to implementation and the impact these approaches have made on clinical trial recruitment
  

Kent Bottles, MD, Senior Fellow, JEFFERSON UNIVERSITY SCHOOL OF POPULATION HEALTH

Jenni Prokopy, Writer, Speaker, Founder & Editrix, CHRONICBABE.COM

Prof. Stan Kachnowski, PhD, Chair of Healthcare Innovation Technology Lab, COLUMBIA UNIVERSITY*

*Chair of Healthcare Innovation Technology Lab

**Please note workshop requires separate registration

Connect ahead of time!
Don’t forget to Join our Linked In Group “e-Patient Connections” – Have something you need to get off your chest? Share your comments and questions regarding digital health platforms, mobile technologies, and electronic health record best practices with our group of healthcare experts and conference participants!