Panel Discussion
Trends and Access to Medications: View from the Rare Disease Community

MODERATOR:
Henrietta Hyatt-Knorr, M.A. Director, Policy and Program Planning and Analysis, Office of Rare Diseases Research (ORDR) NATIONAL INSTITUTES OF HEALTH, DHHS

PANELISTS:
Debra Lewis, O.D., M.A. , Associate Director, OFFICE OF ORPHAN PRODUCTS DEVELOPMENT, FOOD AND DRUG ADMINISTRATION

Ruth Suter, Director, Patient Services, BIOMARIN PHARMACEUTICAL, INC.

Maria T. Hardin, Vice President of Patient Services, NATIONAL ORGANIZATION FOR RARE DISORDERS, INC. (NORD)

Christine Brown, Executive Director, NATIONAL PKU ALLIANCE

IMPACT OF HEALTH REFORM
Anticipating the Results of the Health Reform Debate and Discussing the Costs and Benefits of Proposed Coverage Options
Jeff Lemieux, Senior Vice President, Center for Policy and Research, AMERICA'S HEALTH INSURANCE PLANS (AHIP)

CASE STUDY: BULK REPLENISHMENT PROGRAM
Exploring Direct Relief International’s Bulk Replenishment Program as an Innovative Approach for the Delivery of Current Patient Assistance Programs
Thomas Tighe, President and CEO, DIRECT RELIEF INTERNATIONAL